Happy Thanksgiving!

Monday morning we heading up to Gillette for the 24 hour EEG scheduled a few weeks back. This EEG was scheduled to 1. take a look at how she's doing, and see if theres any change since March with the addition of Clobazam, and 2. observe nighttime "twitches" and movements she's was making more frequently soon after the clobazam was started.



Avery playing puzzles while they hook up the EEG

After the EEG was hooked up, it was hang out in the Hospital room while they monitored the EEG and video Avery for external signs. We had a good time, played LOTS of puzzles, read books, even watched a movie. 

We didn't spend the whole time hanging out in the room, Avery was unplugged from the monitor to stretch her legs and take a walk around the unit.

Tuesday morning finally come, and we sat down with Dr. Feyma to discuss the results of the EEG. We got some good news, First, the "twitches" we were seeing at night when she was sleeping were NOT seizures. They were just involuntary movements while Avery sleeps, something considered normal. Second, the EEG captured the subclinical and Myoclonic seizures Avery has everyday while awake, typically when stimulated or eating, the positive news was although those seizures were still there, and showing up, they were not as long of duration as shown in the March EEG. So, we are not making any med changes for the moment, going to stay the course, and continue to ween off the Topamax in hopes that Avery continues to improve.

With this news, we had a lot to be thankful for this Thanksgiving, and we had a great day with our families. Hope everyone had a great Thanksgiving as well.